PLMR Healthcomms focused on three key tactics; mobilising the patient voice, political lobbying and evidence review.

Bringing together a coalition of clinicians, patients, patient groups and Parliamentarians, PLMR Healthcomms helped shine a spotlight on the issue of essential tremor and the lack of treatment options more broadly, and then focused on the need for patient alternatives, including MRgFUS.

PLMR Healthcomms carried out outreach to over 50 Parliamentarians and held a series of meetings with cross party parliamentarians, resulting in targeted questions and letters to the Health minister pushing for progress.

There was parliamentary agreement to send letters to Secretary of State for Health, resulting in a meeting on the issue.

Alongside this, Insightec worked to highlight wider data that was available so that it could be considered as part of the guidance.

When the consultation was opened, PLMR Healthcomms ensured a strong response rate to the negative draft guidance, drawing on the wider coalition of patient groups and clinicians already engaged, as well as working with interested Parliamentarians to respond.